•《 Energy Seal 》•
♡Day 15 of 365 days #gratefuleveryday exercise .
🌱Yesterday I found all the energy in the world to let the tired feelings go after lack of sleep. But I had an important job to be my friends energy. .
❤I had promised her to push her on her wheelchair to attend meetings, as she had no energy to push herself. This taught me in order to save energy, someone has to use their energy to support you. .
💛So I am Grateful for energy: especially the power of this mudra! Kali! she's my fave 👉❤
🌱By interlocking our fingers! Kali provides empowerment and self confidence! .
🌳Come and practice Kali Mudra and Yoga with me this week:
Thursday 18th January .
Bray Village Hall, Maidenhead (Berkshire)
Email me to Book a place: [email protected] 🌳 .
'At my 20 week scan we were informed our baby had Transposition of the Great Arteries (TGA).
From this point onwards my pregnancy became a whirlwind of appointments and scans...it stole a lot of the joy for me and my family.
When Billy arrived, I had the briefest of cuddles before they took him off to stabilise him and start him on the lifesaving medicine he required.
At seven days old he was taken to theatre. This should have been a 'simple' four or five hour operation. However, our son was gone for 13 hours and had to be resuscitated twice. His heart simply failed to start after he was taken off the bypass machine. We were told he wasn't going to make it.
Two hours later, we were told that he had miraculously come around and he was taken to PICU. We saw him for the first time in 14 hours surrounded by doctors and nurses, with an ECMO machine set up beside him 'just in case'. It was the longest and scariest night of my life.
Our son's chest was left open for seven days due to horrendous swelling. Seeing him lying there so helpless and not being able to hold him or comfort him was terrible. I can't explain the helplessness. After nine very long days I got my first cuddle and you've never seen a happier woman! The next day he was taken back to the high dependency unit and we were on our long slow road to recovery.
We were lucky we had a specialised team around us when Billy was born and that he received the treatment he required straight away. Who knows what would have happened without the detection of TGA at my scan? It also gave us time to prepare for his arrival...though nothing quite prepares you for the reality.
My message to other parents of heart babies is: keep strong - our heart warriors are fighters!'
How awesome is this?!? Thank you @us2macs for sharing the #teamtank onsie!!! This is just too cool!! They had a Tank in their therapy class who made these. Hopefully someday we can get the two Tanks together. 🤗☺❤💛💙
Can you pinpoint a moment in time that changed your identity as a person? Do you remember the words that were said? Mine were, "I will tell you this, there is something wrong with your baby's heart." One week later we were in Winnipeg, headed downtown to the Health Science Centre. We parked our truck on a side street, climbed out and started walking to the hospital. It was such a strange feeling going for this ultrasound. There was no joy or excitement this time, there was no skipping. There was only a sick, empty feeling. The hospital was grim, full of expecting couples, most of them were somber, some crying. We sat in the waiting room what seemed like hours, our baby kicking away, until finally our turn came. The tech got to work taking images while Kevin and I stared at the screen looking for anything that made sense. Blue and red colours flashed on the screen, was that good? What did it mean? It didn't take long and the tech was done. She looked at us and said those words, the ones that changed my identity, the ones that made me a CHD mother, "I will tell you this, there is something wrong with your baby's heart." #ellakaitlynwaldner#chd#chdawareness#chdaware#chdwarriorprincess#heartwarrior#HLHS#dectrocardia#dextroposition#diagnosis#thislittleheartofmine#thisisourstory •continued in comments•
When I survived ventricular fibrillation, a form of cardiac arrest, & lived to tell the tale without brain or heart muscle damage - oh boy did I pray. I figured my miraculous survival was the proof I needed that God is real. I thanked God for saving me & giving me more time on this earth. I made all sorts of promises that I couldn’t keep, like never to be a shitty person ever again or take my sister Olivia for granted. I also asked God for the strength to make it through my upcoming defibrillator surgery...praying just seemed like the right thing to do in such desperate times. I found faith in a hospital bed, and know many of you have too. I still question my belief in God all the time, but my faith in myself is unwavering. I am a survivor - and if God wants to take credit for that - that’s okay with me because believing that I wasn’t alone in this fight against heart disease gave me the hope that I needed to live again. For that I am most grateful. 💖🙏🏽💖 #faith#prayer#powerful#hope#chdwarrior#heartdisease#heartwarrior#scasurvivor#hospital#memories#realtalk#countyourblessings#itsabeautifuldaytobealive
Let’s talk snow.... could there really be snow coming to the Deep South once again?! Welp slap me naked and hide my clothes! Actually don’t do that, it’s too dang cold for that! Seriously though, I hear it’s only flurries, but still... what is going on here?! 🤪
It’s #miraclemonday & we wanted to introduce you to Kealoha. This little #heartwarrior underwent heart surgery w/in his first week of life to treat Transposition of the Great Arteries (TGA). He spent 63 days in the #nicu. Today, Kealoha is happy, healthy & thriving having just celebrated his 2nd birthday 🎉 #miraclebaby#nicugraduate
"Part 1 of 2"
This time last year, we saw our 1 year old boy defy the odds against him & start progressing after nearly losing his life for the 2nd time from another lung infection. Now, this year, we survive the pain of being without him & we keep moving forward, to be "brave." I'm specifically choosing that word for a reason. I know that many people have a goal to "survive" after losing someone they care about, & many days, it might be my goal as well, but surviving alone is just not enough for me. I want to be brave through my pain, like Colton was. I want to continue to do things to honor him & to keep his memory very much alive. Colton didn't hate anyone, he loved people, he loved life, he smiled after being in pain, he acted silly by "talking" (gibberish) & blowing raspberries at thee strangest times, & he had a way about him that just made your bad day turn into a good one.
If it were possible, we'd trade every bit of our free time to be able to spend the nights in the hospital with him again. But we can't. So, I thought I'd update what the "Murray family" has been up to.
See "Part 2"
Today is a special day for Everett: January 14 marks THREE years since dominating open-heart surgery!!! It’s amazing to think back to how quickly he recovered and even more amazing to see how healthy he is post-surgery. Happy Heartiversary, Everett! God is good! #lifewitheverett#heartiversary#heartwarrior